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The Russian Federation has the largest AIDS epidemic in Europe. Since the epidemic began, more than 475,000 cases of HIV have been registered, but the actual number is estimated to be closer to 1 million people.
“We all must work together to stop this epidemic and ensure that those individuals with HIV/AIDS have access to treatment and health professionals who are experts in the field,” says Sergey Smirnov, Ph.D.
Smirnov serves as a leader among non-governmental organizations (NGOs) that focus on HIV/AIDS and other health issues in Russia. He works with the Community of People Living With AIDS (PLWA) and serves as Director of the Social Partnership Development Fund.
From 2007-2009, Johnson & Johnson provided support for a variety of Community of PLWA initiatives, which are designed to improve access to quality treatment and prevention of HIV/AIDS in Russia.
“Support from Johnson & Johnson helped us establish the Russian Community Advisory Board (RuCAB), which brings together HIV/AIDS NGOs, public health officials and pharma as a union,” says Smirnov. “We share resources, talk about our experiences and develop strategies that help patients stay healthy and equip health workers with quality information about caring for these patients.”
In addition to the formation of RuCAB, support from Johnson & Johnson helped:
- Establish a website and forum for HIV-positive women – About 3,000 people visit the site each month.
- Develop a website on antiretroviral treatments – The site provides the latest information on treatments and clinical trial results.
- Train about 50 psychologists, service providers and counselors – The training improved their knowledge of HIV and adherence to treatment.
- Publish educational brochures about adherence to and management of treatment – Thousands of brochures have been distributed to AIDS clinics and NGOs.
The Social Partnership Development Fund
In 2010, support from Johnson & Johnson shifted to a new NGO formed by the Community of PLWA. The Social Partnership Development Fund (SPDF) builds upon the success of the Community of PLWA and focuses on health challenges beyond HIV/AIDS, such as hepatitis C and drug addiction.
The two NGOs are separate entities but are highly collaborative. “For example, the SPDF provides experts and government policy-makers for RuCAB sessions. The Community of PLWA works on program development, coordination of activities and communication among RuCAB members,” says Smirnov. “Together, we’re having a stronger impact on fighting disease.”
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