Working Together with Patients for Better Lung Cancer Care
Our commitment at a glance
Lung cancer remains one of the world’s most urgent oncology challenges, affecting millions of people and families around the world each year.
>2.5 million
people diagnosed with lung cancer globally each year.
#1
cause of cancer death worldwide.
<20%
five-year survival rate for people with advanced EGFR-mutated NSCLC.
Progress in lung cancer requires more than scientific innovation. It also means understanding what matters most to patients and caregivers, bringing their experiences and perspectives into research and care from the start and supporting them throughout the treatment journey.
At Johnson & Johnson, we put this into practice by working alongside patients, caregivers, advocacy partners and the broader health care community throughout our efforts to advance lung cancer care.
Three pillars guide our work
1. Bringing Patient Perspectives into Research
Patients, caregivers and advocates help shape research questions, evidence generation, scientific exchange and how findings are communicated.
2. Understanding Patient Preferences and Unmet Need
Patient insights inform our understanding of what matters most, including treatment goals, tradeoffs and the impact of treatment on daily life.
3. Advancing Patient-Centric Support to Improve Outcomes
Education, resources and partnerships equip patients, caregivers and care teams to make informed decisions and help support quality of life throughout treatment.
From “research for patients” to “research shaped by patients.”
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Research priorities
Informing study questions and priorities. -
Study design
Providing patient and caregiver input into how studies are designed and conducted. -
Scientific exchange
Bringing patient perspectives to scientific meetings and publications, including as authors. -
Research clarity
Making research findings easier for patients to understand.
5+ years
J&J has supported the IASLC STARS (Supportive Training for Advocates on Research and Science) program to help develop lung cancer research advocates, alongside collaborations with organizations including Multinational Association of Supportive Care in Cancer (MASCC) and Global Lung Cancer Coalition (GLCC) and advocate involvement in scientific meetings and publications.
Patient preference research turns lived experience into evidence that can support better conversations between patients and care teams.
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Patient preference research
Exploring what patients value when considering treatment. -
Treatment decision-making
Understanding the factors that influence patient choices. -
Patient and physician perspectives
Identifying where priorities align or differ. -
Lived experience
Understanding how treatment affects daily life and overall wellbeing.
We collaborate with patients, caregivers and advocacy organizations to advance patient education, strengthen supportive care, and develop resources that help individuals affected by lung cancer make informed decisions and access meaningful support throughout their care journey.
Supportive care helps make innovation meaningful in daily life for patients and for the caregivers and families who support them.
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Patient-friendly language
Making complex cancer and treatment information easier to understand. -
Awareness initiatives
Helping bring greater attention to supportive care needs. -
Cross-functional collaboration
Bringing together different areas of expertise to strengthen supportive care. -
Optimizing care
Studying new approaches to better support patients throughout treatment.
Lung Patient Lexicon
Developed with patient advocates to help make complex lung cancer terminology easier to understand, with language that can be used across patient education and scientific communications.
