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Advancing clinical trial data sharing through the Yale University Open Data Access (YODA) Project
Sharing clinical trial data is critical to the advancement of science, medicine and public health. It furthers our understanding of diseases, expands the base of knowledge needed to develop new treatments and generates new insights to inform decisions that will help the greatest number of people.
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Sharing clinical trial data furthers our understanding of science and medicine, expands the knowledge needed to develop new treatments and generates new insights to enable more informed healthcare decisions.
Karla Childers
Head, Bioethics-based Science & Technology Policy
Celebrating a decade of impact through the YODA Project
YODA Project - 10 Anniversary V4.mp4
YODA Project - 10 Anniversary V4.mp4
A pioneering data-sharing model: How the YODA Project works
Researchers request access to data
Through the YODA Project, researchers can request access to deidentified participant-level clinical trial data and research reports. Researchers can request data here
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Research proposal assessed and decision made
YODA Project reviewers, which include external clinical researchers and academics, conduct a thorough, independent assessment of each research proposal and decide whether to provide access to these data.
Data made available and results shared
Upon approval by the YODA Project, Johnson & Johnson makes data and documentation accessible, allowing researchers to perform analyses and share their findings.
Impact of the YODA Project
Our goal is to pave the way for better healthcare data sharing practices to improve health outcomes for the greatest number of people. Since its launch, the YODA Project has approved the majority of requests for clinical trial data from Johnson & Johnson, helping to inform a significant body of external research proposals requiring the use of clinical trial data from our Pharmaceutical and MedTech sectors. Click below for the latest metrics and full details about all the requests submitted to the YODA Project.
